My name is Sandy Hahn, and I’m living with Multiple System Atrophy. MSA is a rare, progressive neurological disease with no cure. When I was diagnosed with this fatal disease, doctors didn’t expect me to still be here.

I am. And I’m getting better.

I’m not cured; but most of my symptoms have improved, and for a disease that’s only supposed to move in one direction, that means everything. I’ve explored every avenue to get here: cold plunge, contrast therapy, meditation, exercise and Ibogaine treatment. I’ve also tried many methods, devices and medications that did not help. I document all of it honestly, because people who need this information deserve to find it.

This started as a podcast with a goal to document my life and my health journey for my family, friends and myself. Throughout the years that goal has expanded to raise awareness on this disease and what I’m doing to improve so that others have access to what’s working for me, as well as what isn’t. Now my podcast lives on my YouTube channel and it’s grown from raising awareness to also raising funds for research and to help other people do what I’ve been able to do to get better.

That’s why I founded The Sandy Hahn Foundation; to raise awareness, fund research into MSA, provide opportunities to people living with neurodegenerative disease and support the patients, caregivers, friends and families who are searching for answers and hope.

I’m never going to give up.